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By xeto official 2022

The Social Security and Family Commission of the Chamber of Deputies will debate on Tuesday, 25th 

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incorporation of the drug Zolgensma, known for being one of the most expensive in the world

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produced by the company Swiss pharmaceutical Novartisthe drug is vital for children diagnosed with spinal muscular 

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atrophy (SMA), a rare, degenerative genetic disease that interferes with the ability to breathe, swallow and move. 

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The debate was requested by deputy Carmen Zanotto (Cidadania-SC). “Society is constantly changing, and public 

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health models clearly need to adapt to these new realities in the pharmaceutical industry,” said the parliamentarian. 

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Despite having received registration from the National Health Surveillance Agency (Anvisa) in 2020, allowing it  

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marketed in Brazil, Zolgensma is not yet available in the SUS. The drug can cost more than US$ 2 million (about R$ 11.5 million) per patient.